ABOUT US AND WHAT WE DO
Tackling Educational and Social Isolation Through Technology
Wallflower's purpose is to help those people who are invisible to everyone else, existing on the sidelines of life due to chronic illness. Wallflower aims to provide modern technology to those isolated by the following chronic conditions:
• Myalgic Encephalomyelitis (ME aka Chronic Fatigue Syndrome/ CFS)• Ehlers Danlos Syndrome (EDS)• Postural Orthostatic Tachycardia Syndrome (POTS)• Fibromyalgia • Lyme Disease
There are already charities for each of these conditions dedicated to raising awareness and raising funds for medical research. Wallflower has been created to help address the everyday isolation associated with living with these chronic conditions. We want to provide technology aimed at reducing isolation, to sufferers in low income households, who have these - mainly misunderstood - medical conditions, which often makes getting access to help difficult.
At Wallflower our goal is to raise much needed funds through various initiatives, and sponsorship - and we'd love for you to get involved. Our success depends on your support, in order to improve lives, and make the world a better place for people who are educationally and socially isolated by these chronic conditions.
Fundraising on behalf of Wallflower would be a huge help - every little bit of support is needed and appreciated.
WHY WE DO WHAT WE DO
One of our trustee's children started to become ill at age 11. She had a series of illnesses. Over two and a half years her health declined. Eventually she received a formal diagnosis of several chronic conditions. There's no need to go into detail here about the way many of these illnesses can be perceived by the medical profession and general public, due to a lack of or outdated information. Sufferers, their families, and carers, all fully understand. Through our personal experiences, and contact with other sufferers, we have become acutely aware that isolation is a major issue.
Children and young people suffering from these conditions, find that Local Authority funding, for alternatives to a traditional 'in school' education, can be very hard to come by. Some children/young people do manage to do part time hours at school/college/university, and some are lucky enough to receive tutoring, or an online education at home. Others are left with nothing, or their parents have no choice but to home educate them.
Chronic illness brings loneliness and solitude to people of all ages. Due to severity of symptoms, the inability to socialise, a lack of understanding, and difficulty in accessing help - all play a part. Something needs to be done to help, and there is technology available out there - if funding can be raised.
One thing all of these illnesses have in common is a distinct lack of funding of biomedical research. There are other charities dedicated to raising awareness an investing in biomedical research, it's important to us that some of our donations are passed to these research charities for these particular conditions so that we can contribute to progress being made.